Sunday, December 14, 2014

News Flash



Please Read if You are a Lyme Patient in Maine Needing Up to date information on support group meetings and event dates!

https://groups.yahoo.com/neo/groups/MaineLymeDisease/info

If you want to know update information about all Maine Lyme Disease support groups please join this Yahoo group by clicking on the link above.  You will be able to stay in touch and have monthly meeting reminders and event information.  Its a great way to stay networked in!

 

Tuesday, December 9, 2014

Ticks in Winter

http://bangordailynews.com/2014/03/19/outdoors/experts-say-cold-winter-likely-wont-kill-maines-ticks/
Bangor Daily News   Outdoors  December 9, 2014

On the cusp of spring, temperatures are still dipping below zero and snow covers the state of Maine. This long, drawn-out winter is taking its toll on many Maine residents — in the form of Vitamin D deficiencies, cabin fever and seasonal depression — but it doesn’t affect everyone.
The recent below-average temperatures aren’t likely to make a dent in the local tick population, according Maine tick experts.
“I hope I’m wrong,” said Clay Kirby, insect diagnostician with the University of Maine Cooperative Extension. “But I can’t foresee much of a decrease [in the tick population] just because we’ve had so much snow cover, which acts as insulation.”
“The bottom line is — this winter isn’t going to kill the ticks,” said Susan Elias, research associate at the Maine Medical Center Research Institute Vector-borne Disease Laboratory. “They’ll be out as soon as it warms up.” 
By Aislinn Sarnacki, BDN Staff


Here are some other articles and websites on this subject:

 http://www.tickencounter.org/tick_identification/deer_tick_life_cycle

Life-cycle of Ixodes scapularis (a.k.a. blacklegged or deer tick)

"Life-cycle of Ixodes scapularis(a.k.a. blacklegged or deer tick) in the northeast/mid-Atlantic/upper mid-western United States. Larval deer ticks are active in August and September but these ticks are pathogen-free. Ticks become infected with pathogens when larvae (or nymphs) take a blood meal from infectious animal hosts. Engorged larvae molt over winter and emerge in May as poppy-seed sized nymphal deer ticks. Please note that most cases of Lyme disease are transmitted from May through July, when nymphal-stage ticks are active. Adult-stage deer ticks become active in October and remain active throughout the winter whenever the ground is not frozen. Blood-engorged females survive the winter in the forest leaf litter and begin laying their 1,500 or more eggs around Memorial Day (late May). These eggs hatch in July, and the life-cycle starts again when larvae become active in August"

 Deer Tick Life Cycle

http://www.mainelyticks.com/familysafety-lifecycle.html 

Your Family's Safety

Life cycle of the Deer Tick

 Deer ticks need blood to survive. In a typical two year cycle, the tick must have three blood meals. The life cycle begins in the spring of year one. In southern Maine, adults lay thousands of eggs on the ground around the end of May, which hatch into six-legged larvae around the first or second week of August. The larvae are about the size of the period at the end of this sentence. It is at this stage that the ticks receive their first blood meal, usually from mice, chipmunks, and birds. This is a point that larvae may become infected with the Lyme disease bacteria. After feeding for several days, the ticks become fully engorged and drop off the host, usually into leaf litter. They will remain dormant until the spring of year two when the larvae molt into eight-legged nymphs, which are about the size of a poppy seed. In the State of Maine, the months of May, June, and July are peak periods for nymphs seeking their second blood meal. While most feed on mice and chipmunks, it is the time of year when pets and humans start spending more time outdoors, and become unsuspecting hosts. Nymphs are very difficult to detect and easily overlooked. After feeding for four or five days, the nymphs will drop off the host and eventually molt into eight-legged adults. In late summer and through the fall, the adult ticks find their way onto large mammals, usually deer, where they mate. This is a time when humans and pets are again susceptible to picking up ticks. While still a threat, the adult ticks are larger than the nymphs and therefore easier to see. The females will attach and feed for up to a week, and then drop off and lay up to 3.000 eggs which will hatch in the spring. The two year cycle begins again.

 
http://www.mainelyticks.com/images/PTMe-Life-cycle-102010.jpg

  The three sources show the Ticks can live year around and that means we need to take year around precautions for ourselves and our pets.  For Humans we can spray our clothes especially socks and shoes and jackets with permethrin which can be found at Walmart for 10$ in the tent section.  Also even in winter it can't hurt to still put on essential oil blends on the skin for an additional barrier.  Click on the Prevention Tab on our site and I linked several resources.  

Some ticks may come off onto the christmas tree from pets so even spraying your tree skirt with permethrin can help kill ticks.  

When it comes to pets make sure your dogs and cats have up to date and working flea and tick control.  Check them before they come into the house.  And you can spray your furniture on the bottom surface area to kill any ticks your pets may brush up onto the couch with Permethrin.  Just let it fully dry before any animal especially cats come into contact with it.  There are also lots of essential oil blends that are safe for cats and dogs but talk with an expert before applying and read all directions before using.  

I am an advocate not an expert so here is Mainely Ticks info. for additional questions.  http://www.mainelyticks.com/ and http://www.tickinfo.com/ both are my go to resources for Tick Prevent and information on Permethrin, essential oils, DEET, and etc.  

If you have further questions or concerns please look under our Contact Us info. at the top right of this page.  

Angele 


Midcoast Maine Lyme Disease Support and Education Conference

Feel free to SHARE with whoever you think needs to learn more about Lyme Disease ~ your friends, your family, your Doctor!!

This is a FREE public event!

Conference details to follow including conference times and details about guest speaker line up and vendor information.

Prevention, Education, Treatment and Support is what you will find at this event ~ for your yourself, for your pets, for your yard, for all your Lyme Disease needs!!

PLEASE SHARE AND PLEASE JOIN US!




December Support Group Meetings and Christmas Party




Do Not Forget Our Christmas Party!!




PLEASE RSVP IF YOU ARE COMING TO THIS PARTY AT:  angbet35@gmail.com

Wednesday, November 5, 2014

Rockport Support Group Meeting November

 
 
If you missed the Wiscasset meeting, feel free to join us at our Rockport meeting!
 
 
Photo: If you missed the Wiscasset meeting, feel free to join us at our Rockport meeting!

Tuesday, October 21, 2014

When Will You See Me?

 
 
When Will You See Me?
 

Will you see me when I enter a store and I am unable to navigate the aisles because they keep moving back and forth,

Will you see me when you stare at the rash on my face and keep asking "how are you feeling" "you poor thing",

Will you see me when I tell you I feel like giving up and talk about the end of my world,

Will you see me when I am struggling to clean my house and my hands are shaking and my legs are locking,

Will you see me when I am forgetting my fleeting thoughts, slurring my speech, and using the wrong tense verbs,

Will you see me when my eye is twitching, my lips in numb and stuck in place, and my legs kick the dashboard of the car for no reason,

Will you see me when I take my drugs eight times a day and ask am I drinking the recommended amount of water,

Will you see me when I say I want more kids the doctors keep telling me I need to wait until I am better,

Will you see me when I am alone in the dark crying and wishing I could be completely normal again,

Will you see me when I roll up my pant leg and stab myself once again with a needle and give myself an intermuscular injection of B12 and then put the needle in my personal sharps container,

Will you see the pain in my eyes, hear the heart ache of my soul, and understand my loss and disappointment,

I was just wondering when will you see me, not Lyme, depression, anger, loss, sickness, rashes, weakness, fatigue, vertigo, tinnitus, depletion, memory loss,

When will you see the real me, the one inside the broken down body

The person who wants to be normal, dance, sing, run, play, jump, eat anything, sleeps deeply,

When will you see me?

By Angele Rice 


I wrote this poem 5 years ago around the start of my Lyme Disease Journey.  Now 6 years have past since I've started treatment and there are still days I wonder if people truly see the struggle I go through each day just to participate in this life.  What I have learned is to surround myself with those who are on the same journey as me and I have found the support and love and hope to keep going.

October Meeting in Wiscasset


Sometimes the hardest part of the Lyme journey is not feeling like you are in a safe space to truly express your anger, frustration, hurt, pain, without hurting those around you.  This is a great chance for us to share all stages of the Lyme Journey and help each along toward healing. 




Tuesday, October 14, 2014

FREE Screening of Under Our Skin 2 Emergence





 https://www.facebook.com/events/344645069051672/
Please click on our Facebook page event if you plan on attending.
 
The Midcoast Lyme Disease Support & Education group cordially invites you to attend the FREE COMMUNITY SHOWING of

UNDER OUR SKIN 2: EMERGENCE (From Horror to Hope)

Sunday, Oct 19th at 2:00 pm
Wiscasset Community Center (Rt 27 Wiscasset, Maine)


"Seven years after the acclaimed documentary UNDER OUR SKIN, the filmmakers catch up with the people and controversies from the original movie.

We witness the emerging epidemic of Lyme Disease as infection and education spread globally.

We watch as the truth emerges about the disease's persistence and reach, about promising new research and about medical collusion and conflicts of interest that continue to impede progress.

We revisit the characters from UNDER OUR SKIN as they emerge into better health, reclaiming their lives and dignity, and offering hope to the legions now suffering.

As Lyme Disease surges, Emergence shines a probing light on the issue and becomes a beacon in the dark."

Please JOIN US for this FREE Community showing. The movie lasts about an hour and will be followed by Q&A. There will be lots of information and pamphlets on Lyme Disease available.


Watch the Trailer to the movie here from Youtube.

 

Tuesday, September 9, 2014

Wiscassett Lyme Disease Support Group Reminder

"IF YOUR DR'S DON'T HAVE THE ANSWERS, 
GET HELP FROM THE CROWD!"



The MIDCOAST LYME DISEASE SUPPORT & EDUCATION group was created for the people in the Midcoast Maine communities by the people in the Midcoast Maine communities.

If you have Lyme, have had Lyme but are still sick, know someone who has Lyme or just want to know more about Lyme ~ we invite you to join us the last Tuesday of each month at the Wiscasset Community Center, 242 Gardiner Rd, Wiscasset Maine from 6-8pm.

This month, we will be meeting on September 30th and our Guest Speaker will be Patti Corscaden, LMT, OMT and the topic will be The Healing Role of Therapeutic Massage in Chronic Illness.

So I invite you to come out and listen to Patti, learn more about Lyme, ask questions and hopefully, find answers.

If you have any questions about the group, you can contact:
 
 
 
 
 
 

Announcing the Rockport Maine Lyme Disease Support Group

We are announcing
a second support group in 
Rockport



What does this mean? Well we are starting up a support group in Rockport Maine to meet the need further up the coast.  And we are still going strong with our Wiscasset group.  We hope to add more in the future.  So if you know of a specific town in the Midcoast area that has a need for a support group please let us know.  Also if you miss a meeting at our Wiscasset group or have family up in the Rockport area please feel free to stop by.  Our Website now has a specific tab for the Rockport Support group with meeting information and directions.  Now please bear with me I am new at adding in Google Maps so if you need more specific directions or the google link is not working please feel free to contact us.
 
 

Wednesday, August 27, 2014

Chronic Lyme Disease: Choose Your Dr Wisely




Lyme Literate Doctor vs untrained PCPs

To the PCP (the untrained doctor), your symptoms will boggle their medical intelligence. Blood tests will be of no help to them and may even lead them in the wrong direction. And as the bacteria further spreads throughout your body and your symptoms become sporadic in nature, instead of admitting that they are baffled and treading outside the boundaries of their general practice knowledge, they will turn it around on you with disbelieving tones and body language. At your insistence, they will follow outdated guidelines and declare you "CURED" after just 21-days of antibiotics. They will miss the early window, taking your first visit as Stage 1 and all their efforts will fall in vain to the wayside. You may leave the office more confused than ever, frustrated, or possibly relieved ~ however, your journey is just beginning.

 Now the Lyme Literate Doctor has all of the same basic medical school training ~ however, what makes them stand apart, is the ongoing continuing education that they submit themselves too, conferences that they attend on a regular basis, lyme networks and resources that they are connected to. They have experienced first hand that some patients just do not respond to the 21-day round of antibiotics. They understand the complex intricacies that surround this disease in all stages and offer alternative treatment options. They will do blood work but it is not necessary in order for them to diagnose you. They understand what all your symptoms mean, individually and collectively, they know by your response whether treatment is working or if you need to change protocols. They will believe you from day one and they will never mock you or talk to you in condescending tones. They will never ever call you crazy because they understand that once the bacteria cross the brain barrier, that you are prone to all kinds of neurological symptoms and cognitive failures. Once they diagnose you as having Lyme, they may pursue blood work through a Lyme Laboratory to uncover if any co-infections exist. Mention the word co-infection to your PCP and watch for their reaction. Co-infections can complicate a lyme patients treatment with strange and unusual symptoms. When a Lyme Literate doctor is dealing with a Lyme patient, they know to expect this. Your untrained PCP will become even more baffled and change your diagnosis a dozen times over. They will send you to every specialist under the sun ~ who, if they are not Lyme Literate, will send a note back to your PCP stating that they found NOTHING wrong with you. After countless visits, thousands of dollars spent on medications that didn't work, tests that revealed nothing and energy spent chasing your tail, your doctor will proclaim that you need to see a therapist, that you are depressed and possibly mentally ill.
 Your Lyme Literate doctor will explain things every step of the way, what to expect from the illness and from the treatment that you are taking. When you call or see your Lyme Literate with a symptom concern, they won't be surprised. They may suggest backing off on your dosage to calm the herxing effect that you are having. They will recommend things that foster healing on all levels. Because they understand this disease inside and out. A Lyme Literate doctor is not GOD, they won't be able to give you a time line but they will be able to read your level of healing based on your symptoms and they will be supportive every step of this journey.

So if you or a loved one thinks that they may have Chronic Lyme or have been told that they have Chronic Lyme ~ your next decision is a crucial one. It will make all the difference in the world between how long you remain sick and how soon you get better.

I encourage you to reach out to your State Lyme Disease Websites and Support Groups and if you don't have that information, you can find it at http://whatislyme.com/websites-and-support-groups-by-state/

These groups can be a lifeline! ~ with Angele Rice

©paulajacksonjones2014
Lyme Warrior 24/7/365

Brunswick Times Article: Healthy Living September 2014 Issue

http://www.timesrecord.com/documents/HealthyLivingSeptember2014/Page_013.pdf

For the 2014 September Issue of Healthy Living an article was published about Midcoast Maine Lyme Disease Support Group.  Click the above link to read it in full :)

September 2014 HEALTHY LIVING 13

WISCASSET — The Midcoast Lyme Disease Support and Education Group
meets the last Tuesday of each month at the Wiscasset Community Center from 6-8 p.m.
The meetings began in May and have drawn about 15 people, according to one
of the organizers, Angele Rice of Bath, who was bitten as a 13-year-old but was 30
before being diagnosed. Rice noted that she wasn’t sure what to expect when the
group was launched, but was “glad to see a combination of support people coming
with the person who has Lyme.” While a medical perspective can be important, one of the group’s goals,
according to Rice, is to offer emotional support.
The group seeks to continue to raise community awareness, foster education and advocate on behalf of Lyme patientsin the Mid-coast area.
Paula Jones of Nobleboro has battled late stage neurological Lyme since being
bit in 2009. It was misdiagnosed over and over for the next two years, she said, and
it was only “after seeking a Lyme literate specialist, I spent the next three years in
various stages of Lyme treatment and went into remission April 2014.”
She met Rice through “some local Lyme awareness events and when we discovered that Mid-coast Maine had the second highest rates of Lyme disease in the entire state, we decided something needed

to be done,” she told Healthy Living.
“Awareness, education, advocacy and support. We’re here to raise awareness to our
community not only for prevention but also advocacy and support for diagnosis
and treatment options. We started the support group in May and it has been a
huge source of information, compassion, hope and direction for those dealing with
a disease that boggles most untrained physicians. We have statewide and
nationwide networks of support and information.” Rice explained that many people find it
necessary to go out of state for treatment and Rice is finding that there are many
people — like herself —who may have been infected for a long time but were
misdiagnosed for years.
These meetings are free and always open to the public.
The guest speaker for the Sept. 30 meeting is Patti Corscaden, licensed massage therapist, who will be speaking about therapeutic massage, how it relates to chronic illness and can foster healing.
The group is for anyone who suffers from Lyme disease, thinks they might
have it or may have had it at one point, or has a loved one afflicted with it.
Childcare is not provided and this is a support group setting so organizers ask
attendees to please plan accordingly.
For more information, contact coorganizers
Paula Jones at 446-6447 or
lymewarrior247365@gmail.com, or
Angele Rice at 841-8757 or

angbet35@gmail.com.
The group has a website with links to support and educational issues at
www.midcoastlymediseasesupport.blogspot.com, as well as a Facebook page,
Midcoast Lyme Disease Support.





Tuesday, August 19, 2014

August Support Group Meeting Update PLEASE READ!


If you need to contact myself or Paula please feel free.  My email (Angele) is: angbet35@gmail.com
and Paula's email is:  lymewarrior247365@gmail.com

October Philadelphia Lyme Protest

"Every year The Mayday Project holds a protest to raise awareness about Lyme disease and to demand that the IDSA change their flawed testing and treatment guidelines so those suffering can get the treatment they need to overcome this disabling condition. We will be protesting this October at the IDSA’s annual conference in Philadelphia, PA.
We are turning IDWeek into LDWeek! Oct.11th is about getting a chance to show up when all the Doctors who need Lyme education are around! Join us and help us turn the tide!"
"Join Us As We Protest The IDSA!
We will be protesting the IDSA during their annual conference in Philadelphia, PA. Please join us in letting the IDSA know that we won't back down until they change their treatment guidelines for Lyme patients.
The event will take place October 11, 2014 from 8:00 am - 3:00 pm at the Philadelphia Convention Center."









Just Click here!
www.themaydayproject.org
Facebook Event Page with continuous Updates
https://www.facebook.com/events/1506735772893178/1524659411100814/?notif_t=like

September 6th Bethel Maine Lyme Awareness Conference



Facebook Event page is:  https://www.facebook.com/events/855192697838096/
Contact Rhonda or Diane for more details!

Tuesday, June 10, 2014

Support Group Meeting Update




"Most people dealing with Lyme eventually come face to face with the need to improve their diet. It may include going gluten-free, and/or eliminating assorted other food allergens, and/or finding ways to incorporate more organic, fresh produce into their daily meals. The simple fact is, what you eat has a tremendous effect on how well you can fight back from chronic illness. However, it’s also a fact that, when you’re sick, it can seem well-nigh impossible to make fundamental changes in your diet." {Gail and Laura Piazza, Authors of Recipes for Repair, A Lyme Disease Cookbook}

With that being said, it is an honor and privilege to announce this month's Guest Speaker ~ ANNIE ROSE WILLIAMS ~

Annie Rose Williams is a Nutritionist, Lifestyle Educator, and Health Coach. She earned her Bachelor of Arts degree in Sociology from Bowdoin College in 1985 and her Master of Science in Clinical Nutrition from the University of Bridgeport in Bridgeport, Connecticut, in August of 2012.

Annie's goal is to help her clients by educating and empowering them so that they can begin to incorporate healthier food and lifestyle choices into their daily lives. Fueling the body with a broad variety of nutrient dense foods is at the core of healing and ultimately leads to a whole body balance.

Annie Rose Williams meets with her clients at True North Health Center in Falmouth, ME and also at Chiropractic Family Wellness Center in Scarborough, ME but you can come and meet her and chat with her on June 24th from 6-8pm in Wiscasset at the Midcoast Lyme Disease Support & Education Group.

We hope that you will join us ~ this meeting is open to the public.
All are welcome to come and learn more about Lyme Disease and the importance of diet and healing.

Tuesday, May 6, 2014

Mayday 2014


As a Mainer I have been very lucky being able to attend last years Lyme Disease protest in Washington DC.   I was able to meet so many friends from the Lyme community online, in person.  We got to raise Lyme Disease Awareness together.   We had 250 people come to the rally and 150 marched around the White House.  I've never been to a protest before and I was so overwhelmed by the experience.  I've never met that many people with Lyme Disease in my whole life.  It was great to see in person an entire community in action helping each other out.

I am excited to say this year I will be a part of the same type of protest in front of the IDSA Headquaters in Arlington, Virginia this year May 22-23.  For two whole days we are planning to stand in from of their building in shifts.  I hope this time as we get media coverage and attention that we will be able to make Lyme Disease a common topic of conversation here in the USA and the World.  And in the end help Lyme Disease Patients get the proper treatment and care they deserve.

If you would like to know more about this years Mayday Protest please go to this site:  http://www.themaydayproject.org/
Faces of Lyme Disease Video








Friday, May 2, 2014

Our First meeting coming up!






We are getting ready for our first meeting the end of May :) Come visit us :)