For the 2014 September Issue of Healthy Living an article was published about Midcoast Maine Lyme Disease Support Group. Click the above link to read it in full :)
September 2014 HEALTHY LIVING 13
WISCASSET — The Midcoast Lyme Disease Support and Education Group
meets the last Tuesday of each month at the Wiscasset Community Center from 6-8 p.m.
The meetings began in May and have drawn about 15 people, according to one
of the organizers, Angele Rice of Bath, who was bitten as a 13-year-old but was 30
before being diagnosed. Rice noted that she wasn’t sure what to expect when the
group was launched, but was “glad to see a combination of support people coming
with the person who has Lyme.” While a medical perspective can be important, one of the group’s goals,
according to Rice, is to offer emotional support.
The group seeks to continue to raise community awareness, foster education and advocate on behalf of Lyme patientsin the Mid-coast area.
Paula Jones of Nobleboro has battled late stage neurological Lyme since being
bit in 2009. It was misdiagnosed over and over for the next two years, she said, and
it was only “after seeking a Lyme literate specialist, I spent the next three years in
various stages of Lyme treatment and went into remission April 2014.”
She met Rice through “some local Lyme awareness events and when we discovered that Mid-coast Maine had the second highest rates of Lyme disease in the entire state, we decided something needed
to be done,” she told Healthy Living.
“Awareness, education, advocacy and support. We’re here to raise awareness to our
community not only for prevention but also advocacy and support for diagnosis
and treatment options. We started the support group in May and it has been a
huge source of information, compassion, hope and direction for those dealing with
a disease that boggles most untrained physicians. We have statewide and
nationwide networks of support and information.” Rice explained that many people find it
necessary to go out of state for treatment and Rice is finding that there are many
people — like herself —who may have been infected for a long time but were
misdiagnosed for years.
These meetings are free and always open to the public.
The guest speaker for the Sept. 30 meeting is Patti Corscaden, licensed massage therapist, who will be speaking about therapeutic massage, how it relates to chronic illness and can foster healing.
The group is for anyone who suffers from Lyme disease, thinks they might
have it or may have had it at one point, or has a loved one afflicted with it.
Childcare is not provided and this is a support group setting so organizers ask
attendees to please plan accordingly.
For more information, contact coorganizers
Paula Jones at 446-6447 or
Angele Rice at 841-8757 or
The group has a website with links to support and educational issues at
www.midcoastlymediseasesupport.blogspot.com, as well as a Facebook page,
Midcoast Lyme Disease Support.