Thursday, November 12, 2015

Union Senior Citizen Group

Advocates Paula Jackson Jones and Alison Kelsey-Bryant presented today at the Union Senior Citizen group.  If your group would like us to come to your group and give an informative presentation about Lyme Disease, Prevention, Support, and Awareness, please call or email us.  


Wednesday, November 11, 2015

Daytime Support Group Meetings

For those afflicted by Lyme and unable to drive to one of our evening support meetings in Brunswick, Rockland or Wiscasset ~ this for YOU!!!

Midcoast Lyme Disease Support & Education (MLDSE) is happy to announce the opening of their newest Lyme Disease Support group location ~ in Damariscotta!!!

Join Paula Jackson Jones and Alison Kelsey-Bryant on Monday, November 16th from 1-3pm (and the 3rd Monday of every month thereafter) for awareness, education, advocacy and most importantly SUPPORT with regards to Lyme Disease and tick-borne associated diseases!

This support meeting is FREE and open to the public; however, childcare is not provided so please plan accordingly.

Please ((SHARE)) this post for those who need to see it!!!


Tuesday, October 6, 2015

Rockland Support Group Meeting Reminder!

https://bangordailynews.com/community/how-do-i-know-if-i-have-lyme-disease/?ref=inline




 

Guest speaker at support group to discuss Lyme art of disease diagnosis

 Tuesday, Oct. 13, 2015 6 p.m. to 8 p.m.

Location: Midcoast Recreation Center, 535 West Street (Rt 90), Rockport, Maine
For more information: 2074466447; midcoastlymediseasesupport.blogspot.com
ROCKPORT, Maine — Midcoast Lyme Disease Support and Education will host Dr. Deb Moskowitz talking about Lyme disease at its meeting 6-8 p.m. Tuesday, Oct. 13, at the Midcoast Recreation Center, 535 West St., Route 90. She will discuss the art of the clinical diagnosis of Lyme disease, including how she “triangulates” laboratory reports, exams and patient histories to decipher the grey area between obviously positive and obviously negative Lyme disease diagnoses.
For information, call Paula Jackson Jones at 446-6447 or go to midcoastlymediseasesupport.blogspot.com.

Tuesday, September 15, 2015

September Wiscasset Support Group Meeting Reminder

LYME DISEASE: STORIES OF HOPE

Do you have Lyme Disease? 
Think you might have Lyme Disease?
Are you suffering from Lyme and looking for answers and direction?
Know someone who does or just want to learn more about prevention, diagnosing and treatment options? 

Then join Midcoast Lyme Disease Support & Education (MLDSE) on Tuesday, September 29 from 6-8pm at the Wiscasset Community Center (242 Gardiner Rd, Wiscasset) for a FREE informational and supportive community meeting.

Come hear Paula Jackson Jones, Angele Rice and Alison Keysey-Bryant as they share their experiences with Lyme Disease and how they found their journey to wellness.

Come and listen. Come and share. But please come. Bring your questions, find some answers, directions and more importantly, find support and hope!

For more information about this meeting, please contact Paula (207) 446-6447 or Angele (207) 841-8757.

Midcoast Lyme Disease Support & Education is a Maine nonprofit organization and an affiliate of the national Lyme Disease Association that raises awareness, fosters education, advocates for change and provide community support to the Midcoast region of Maine.








Saturday, September 12, 2015

SAVE THE DATE!!!!

 

www.midcoastlymediseasesupport.blogspot.com and Conference 2016 Tab on our website for future details. We also have an Events Tab on our Facebook Page where we will post up to the minute details on this conference and you can click on Attending HERE: https://www.facebook.com/events/858441504210070/

Thursday, September 3, 2015

September Rockport Meeting



Our Rockport Support Group meeting is an Open Share meeting giving people the chance to share how they are doing, ask questions, and get some support from the group.

Thursday, August 27, 2015

How to Keep a Tick Bite from Becoming Lyme Disease



How to Keep a Tick Bite from Becoming Lyme Disease

 Displaying Sarah ACkerly ND.jpg


 Come join Dr. Sarah Ackerly, ND, Northern Sun Family Healthcare on Wednesday September 2 from 6-8pm in an informative discussion about tick bites as she speaks at Midcoast Lyme Disease Support & Education support meeting at Midcoast Hospital in Brusnwick, Maine.  Dr. Ackerly will share information on what to do when you are bitten by a tick, from removal to testing and treatment in the prevention of Lyme disease.  Learn how to recognize the early symptoms of Lyme disease, timelines and types of testing for Lyme disease and co-infections. Dr. Ackerly will also include options for treatment using both conventional and natural therapies in the treatment of tick bites in adults and children.

Monday, August 17, 2015

Bob Giguere Speaks at Wiscasset Support Group Meeting

"The diagnosis and treatment of Lyme disease remains controversial because the scientific understanding of this illness continues to evolve and basic questions remain unanswered. The roots of the controversy are the lack of reliable tests and biological markers for the disease and the low therapeutic efficacy of commonly prescribed antibiotic regimens.
Until we can separate the infected from the uninfected and the cured from the uncured, arguments over diagnostic and therapeutic approaches will continue.
TODAY'S PATIENTS CAN'T WAIT FOR TOMORROW'S INSIGHTS!" 
 ~ Elizabeth Maloney MD, ILADS ~






JOIN US ~ TUESDAY AUGUST 25 6:00pm
As Bob Giguere from Igenex, the leading tick-borne research laboratory, explores and explains all of this scientific controversy to us ~ in layman's terms!
I've heard him speak several times and I promised you you WON'T be disappointed!!!!


  Tuesday August 25 6:00 - 8:00pm
         Wiscasset Municipal Building 
(police/fire station)
Corner of Rt 1 and Rt 27
Wiscasset, Maine
*** PLEASE NOTE CHANGE IN MEETING LOCATION ~ THIS DATE ONLY ***



Displaying Bob Gugiere Igenex.jpg


Bob Giguere, Igenex Inc, to speak at Wiscasset Lyme meeting

On Tuesday, August 25th, the Midcoast Lyme Disease Support & Education (MLDSE) will be holding their Wiscasset Lyme support meeting at the Wiscasset Municipal Building (police/fire station) in the Community Room from 6-8pm (as the Wiscasset Community Center will be closed for maintenance). They are happy to announce that Bob Giguere from Igenex, Inc will be their guest speaker that evening.

After receiving his bachelor's degree from Providence College, Bob worked at Collaborative Research, Inc. for over 5 years during which time he received molecular biology training at David Botstein's laboratory at MIT. He became the Senior Vice President / COO at Boston Biomedical Clinical Laboratory in Ct and directed this microbiology & infectious diseases esoteric laboratory through the 1990's. He joined IGeneX, Inc. in 2005 as the Director of Sales, and has spent the last 9 years speaking not only to medical providers and patient support groups but also has been invited to speak on Lyme and co-infection testing at medical schools and conferences throughout the United States.

Igenex, Inc, located in Palo Alto, California, is the leading reference laboratory specializing in state-of-the-art clinical and research testing for Lyme Disease and associate tick-borne diseases and has been for over 20 years. They are a specialty immunology laboratory and research facility, providing personalized service to over 1,000 private practice physicians, hospitals, and other clinical reference laboratories throughout the U.S. and Canada. The laboratory also functions as a pilot site for diagnostic manufacturers in the introduction of new assays, and has extensive collaborative agreements with multiple research groups. The Reference Laboratory, founded in 1983, was purchased from 3M Diagnostic Systems (3MDS-Santa Clara, CA and BioWhittaker, Inc., Walkersville, MD) in 1991 by IGeneX, Inc. and moved to Palo Alto, California. The laboratory is CLIA-certified, inspected by the Department of Health and Human Services.

MLDSE is a nonprofit organization that raises awareness, fosters education, advocates for change and provides community support across the Midcoast Region of Maine with support groups in Brunswick, Rockport and Wiscasset.

For more information about this meeting or MLDSE, please contact Paula Jackson Jones (207) 446-6447 or Angele Rice (207) 841-8757 or visit our website www.midcoastlymediseasesupport.blogspot.com


Monday, August 10, 2015

Rockport Support Group Meeting: August



This is an Open share meeting and a great opportunity for people to ask questions, get to know others and their stories, and network within their local Lyme Disease Community.  Below is photo of the Midcoast Recreation Center.  Directions are found under Our Meeting Locations.  If you have any questions please contact MLDSE anytime.  Our contact information is posted on our website.  
And here it is again for quick reference.

Contact Us

Angele Rice
Cell: 207-841-8757

Paula Jackson Jones
Cell: 207-446-6447

Our Email:
midcoastlymediseasesupedu@gmail.com

 

Wednesday, July 15, 2015

Reduce Ticks in your yard

http://naturalawn.com/ 



 
NaturaLawn of Maine came and talked at our support group last night. They have some great natural services to reduce ticks and other insects on your lawn and property perimeter. A huge savings in the long run when you compare the price of lawn care prevention of ticks and testing for Lyme disease. It's worth looking into! Their turn around time from phone call to first treatment is within 7-10 days. And right now we are at peak Tick Populations.
 
http://tickranger.com/

About Tick Ranger®

Ticks carry a potential health hazard that can affect you, your children, and your pets, for the rest of their lives. The Tick Ranger® Program is the first step you can take in protecting your home environment from these nasty pests. Our approach to tick control is an integrated system with the homeowner that will reduce the potential risk of infection from tick bites. With the Tick Ranger® Program, you will immediately realize a substantial reduction, with our goal of total elimination, in tick populations - we guarantee it.

What You Can Expect From Our Tick Ranger® Program

  • Coverage - The Tick Ranger® treatment area covers: lawn areas, landscape beds, stone walls, wood piles and 25-feet beyond the perimeter wood line.
     
  • Control - We will control ticks currently on your property, as well as ticks that drop from deer and other animals that cross your property!
     
  • Convenience - Once our application has been applied and dries you can return to enjoy your property.
     
  • Reduction - It offers you peace of mind by drastically reducing the chances of contracting Lyme disease!
     
  • Relief - It makes it safer for children and pets to play outside in your yard.
     
  • Confidence - Tick Ranger is an environmentally friendly choice with awesome results.  
  • Safety - Do you use well water? Not a problem!  
http://naturalawn.com/Lawn-Care-Help/3256/11-Ways-to-Keep-Ticks-Away-From-Your-Yard


You also read about their 11 Tips to keep the ticks away.


11 Ways to Keep Ticks Away From Your Yard

Ticks on your animalsTicks in your yard can put you and your family at risk for being bitten and possibly contracting Lyme Disease or Rocky Mountain Spotted Fever. To help reduce the chances of tick bites, follow these simple property management practices:
  1. Mow your lawn on a regular basis. Ticks like to hide in tall grass and wait for a host to latch on to.
  2. Remove leaf debris and keep garden beds clean and dry.
  3. Prune shrubs and bushes so they aren’t extending into walk areas where people or pets will brush up against them.Tick
  4. Keep ground covers to a minimum, as ticks like to hide there.
  5. Avoid shady areas; ticks like the shade because they can’t tolerate heat.
  6. Create a natural barrier around your property using gravel or wood chips. These areas will be hot and dry and make navigation difficult for the tick.
  7. Keep pets out of wooded areas as much as possible.
  8. Try to keep deer out of the yard as they are the preferred Deerhost of deer ticks.
  9. Grow plants with a strong odor or essential oil such as lavender, lemon balm, or marigolds. Here’s a list of good mosquito repellent plants that also help repel ticks.
  10. If you have a wood pile, keep it neat and in a sunny area. Remember, moist wood and share is a tick magnet.
  11. Hire a professional applicator such as Tick Ranger® to apply a natural tick repellent to your property.
If you have other property management tips for keeping ticks out of your yard, share them with us on Facebook today!

Get My
Free Price Quote

- See more at: http://naturalawn.com/Lawn-Care-Help/3256/11-Ways-to-Keep-Ticks-Away-From-Your-Yard#sthash.5USdqnF2.dpuf

11 Ways to Keep Ticks Away From Your Yard

Ticks on your animalsTicks in your yard can put you and your family at risk for being bitten and possibly contracting Lyme Disease or Rocky Mountain Spotted Fever. To help reduce the chances of tick bites, follow these simple property management practices:
  1. Mow your lawn on a regular basis. Ticks like to hide in tall grass and wait for a host to latch on to.
  2. Remove leaf debris and keep garden beds clean and dry.
  3. Prune shrubs and bushes so they aren’t extending into walk areas where people or pets will brush up against them.Tick
  4. Keep ground covers to a minimum, as ticks like to hide there.
  5. Avoid shady areas; ticks like the shade because they can’t tolerate heat.
  6. Create a natural barrier around your property using gravel or wood chips. These areas will be hot and dry and make navigation difficult for the tick.
  7. Keep pets out of wooded areas as much as possible.
  8. Try to keep deer out of the yard as they are the preferred Deerhost of deer ticks.
  9. Grow plants with a strong odor or essential oil such as lavender, lemon balm, or marigolds. Here’s a list of good mosquito repellent plants that also help repel ticks.
  10. If you have a wood pile, keep it neat and in a sunny area. Remember, moist wood and share is a tick magnet.
  11. Hire a professional applicator such as Tick Ranger® to apply a natural tick repellent to your property.
If you have other property management tips for keeping ticks out of your yard, share them with us on Facebook today!
- See more at: http://naturalawn.com/Lawn-Care-Help/3256/11-Ways-to-Keep-Ticks-Away-From-Your-Yard#sthash.lb5v0luo.dpuf

11 Ways to Keep Ticks Away From Your Yard

Ticks on your animalsTicks in your yard can put you and your family at risk for being bitten and possibly contracting Lyme Disease or Rocky Mountain Spotted Fever. To help reduce the chances of tick bites, follow these simple property management practices:
  1. Mow your lawn on a regular basis. Ticks like to hide in tall grass and wait for a host to latch on to.
  2. Remove leaf debris and keep garden beds clean and dry.
  3. Prune shrubs and bushes so they aren’t extending into walk areas where people or pets will brush up against them.Tick
  4. Keep ground covers to a minimum, as ticks like to hide there.
  5. Avoid shady areas; ticks like the shade because they can’t tolerate heat.
  6. Create a natural barrier around your property using gravel or wood chips. These areas will be hot and dry and make navigation difficult for the tick.
  7. Keep pets out of wooded areas as much as possible.
  8. Try to keep deer out of the yard as they are the preferred Deerhost of deer ticks.
  9. Grow plants with a strong odor or essential oil such as lavender, lemon balm, or marigolds. Here’s a list of good mosquito repellent plants that also help repel ticks.
  10. If you have a wood pile, keep it neat and in a sunny area. Remember, moist wood and share is a tick magnet.
  11. Hire a professional applicator such as Tick Ranger® to apply a natural tick repellent to your property.
If you have other property management tips for keeping ticks out of your yard, share them with us on Facebook today!
- See more at: http://naturalawn.com/Lawn-Care-Help/3256/11-Ways-to-Keep-Ticks-Away-From-Your-Yard#sthash.lb5v0luo.dpuf

11 Ways to Keep Ticks Away From Your Yard

Ticks on your animalsTicks in your yard can put you and your family at risk for being bitten and possibly contracting Lyme Disease or Rocky Mountain Spotted Fever. To help reduce the chances of tick bites, follow these simple property management practices:
  1. Mow your lawn on a regular basis. Ticks like to hide in tall grass and wait for a host to latch on to.
  2. Remove leaf debris and keep garden beds clean and dry.
  3. Prune shrubs and bushes so they aren’t extending into walk areas where people or pets will brush up against them.Tick
  4. Keep ground covers to a minimum, as ticks like to hide there.
  5. Avoid shady areas; ticks like the shade because they can’t tolerate heat.
  6. Create a natural barrier around your property using gravel or wood chips. These areas will be hot and dry and make navigation difficult for the tick.
  7. Keep pets out of wooded areas as much as possible.
  8. Try to keep deer out of the yard as they are the preferred Deerhost of deer ticks.
  9. Grow plants with a strong odor or essential oil such as lavender, lemon balm, or marigolds. Here’s a list of good mosquito repellent plants that also help repel ticks.
  10. If you have a wood pile, keep it neat and in a sunny area. Remember, moist wood and share is a tick magnet.
  11. Hire a professional applicator such as Tick Ranger® to apply a natural tick repellent to your property.
If you have other property management tips for keeping ticks out of your yard, share them with us on Facebook today!
- See more at: http://naturalawn.com/Lawn-Care-Help/3256/11-Ways-to-Keep-Ticks-Away-From-Your-Yard#sthash.lb5v0luo.dpuf

Rockport Meeting July

 

Leslie Abrons, LCSW, ILADS-trained and Lyme Literate counselor addresses the neuro-manifestations of Lyme Disease when doctors are always telling us it's in our heads and and try to refer us off to a counselor. She shares with us that we are NOT crazy and explains the role that Lyme Disease and co-infections play in our brains.
If you missed her at our Wiscasset meeting, please join us in Rockport!

Wednesday, May 20, 2015

Addressing Lyme Disease Inflammation




ADDRESSING LYME DISEASE INFLAMMATION
The Midcoast Lyme Disease Support & Education announces Jolinda Rockett, Acupuncture and Homeopathy, will be speaking at their next Lyme Disease support meeting on Tuesday, May 26.  The meeting will be held at the Wiscasset Community Center 242 Gardiner Road (Rt27), Wiscasset, Maine from 6:00-8:00pm and it is free and open to the public.

Specializing in treating chronic Lyme Disease and tick borne associated coinfections, Jolinda will be talking about the "inflammatory" aspects of Lyme disease, addressing ways acupuncture and homeopathy can address it and sharing some take home ideas of how anyone can improve the body's fight against any inflammation.

Originally from Texas, Jolinda has been practicing in Camden, Maine since 1989.  She holds a BSN from University of Texas, MAc from Sophia Institute and homeopathy studies around the country, receiving her CCH in 2013.

For more information about this meeting, please call Paula.Jackson Jones (207) 446-6447 , Angele Rice (207) 841-8757 or visit our websitewww.midcoastlymediseasesupport.blogspot.com


Wednesday, May 6, 2015

Maine Call to Action- Contact Your Legislators on LD 422

MAINE CALL TO ACTION - CONTACT YOUR LEGISLATORS ON LD 422

Please COPY and REPOST!!! A "SHARE" will only capture the link!!!

It is time to contact  your Representatives and Senators!

The Lyme bill, LD 422,  An Act To Improve Access to Treatments for Lyme Disease, is going to come to the floor of the House maybe as early as tomorrow, Thursday May 7th!. It has come out of Committee as a divided report and the MAJORITY Report is what you want to ask your legislator to support.  

Please use the sample language below to send an email or make a call, to your House Representative and Senator as soon as possible.  If you wish to read more information about the history of this legislation, there is more data below the sample language.   
 
You can find your legislators here by entering your address:

*********************************************************************

Sample Letter

Dear Representative {Last Name},
or
Dear Senator {Last Name},
 
I am requesting that you support the Majority Report for LD 422, An Act To Improve Access to Treatments for Lyme Disease, which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics.

Please, DO NOT support the Minority Report as this language ties the hands of the licensing boards to discipline doctors when necessary. 

If you have questions please feel free to contact me. 

Thank you for your support of the Majority Report of LD 422.  

Sincerely,
Name
Address
Telephone
email

**********************************************************************************************************************************
Here is the longer version we sent to MaineLD list serve:

It is time to contact  your Representatives and Senators!

The Lyme bill, LD 422,  An Act To Improve Access to Treatments for Lyme Disease, is going to come to the floor of the House maybe as early as tomorrow, Thursday May 7th!. It has come out of Committee as a divided report and the MAJORITY Report is what you want to ask your legislator to support.  

Please use the sample language below to send an email or make a call, to your House Representative and Senator as soon as possible.  If you wish to read more information about the history of this legislation, there is more data below the sample language.   
 
You can find your legislators here by entering your address:

*********************************************************************

Sample Letter

Dear Representative {Last Name},
or
Dear Senator {Last Name},
 
I am requesting that you support the Majority Report for LD 422, An Act To Improve Access to Treatments for Lyme Disease, which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics.

Please, DO NOT support the Minority Report as this language ties the hands of the licensing boards to discipline doctors when necessary. 

If you have questions please feel free to contact me. 

Thank you for your support of the Majority Report of LD 422.  

Sincerely,
Name
Address
Telephone
email

*********************************************************************

The History

In the April 23, 2015 Work Session LD 422, An Act To Improve Access to Treatments for Lyme Disease, came out of Committee as a divided report with a Majority Report and a Minority Report.  This means that when it comes to the House floor, both may be presented and voted on.  We want the Majority Report!

This is the Majority Report:  Rep. Fecteau presented an amendment that mirrors the language of the 2009 Massachusetts law which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics. 
 It was approved by Committee members Sen. Patrick, Rep. Austin, Rep. Campbell, Rep Fecteau, Rep Gilbert, Rep Lockman and Rep Stetkis.  If any of these folks are your legislators, send them a thank you note. We are pleased that this came out as the Majority Report.  

This is the Minority Report / Resolve: At the same session Sen. Volk and Rep Herbig submitted a "Resolve".  Essentially, this Resolve is a document that directs the licensing boards to send a letter to licensees telling them they can use "non-traditional treatments" and they won't be disciplined based on that, if they are using informed consent and document treatment results in patients' charts.
A Resolve does not carry the weight of law even if it is, ultimately, passed.
The Minority Report / Resolve was approved by Committee members Sen. Volk, Rep. Herbig, Rep. Ward and Rep. Bates.  If any of these folks are your legislators, you may want to contact them and encourage them to rethink their position and vote for the Majority Report.  

Sen. Cushing and Rep Mastraccio were not present for the Work Session and vote, but we have since heard that they voted for the Minority Report / Resolve so that makes the final vote 7-6 in our favor.  Again, if any of these folks are your legislators, you may want to contact them and encourage them to rethink their position and vote for the Majority Report.

Both reports are listed here:

We have been in contact with Maine doctors and they are appreciative of all of your efforts!

Thank you so much, 

The Lyme Legislative Work Group






Tuesday, May 5, 2015

Emergence (Part 2 of Under Our Skin) Viewing!



What the trailor for the movie here ^^

"In this dramatic follow-up to the widely acclaimed UNDER OUR SKIN, EMERGENCE takes the viewer on a journey from horror to hope. We witness the emerging epidemic of Lyme disease as infection and education spread globally. We watch as the truth emerges about the disease’s persistence and reach, about promising new research, and about medical collusion and conflicts of interest that continue to impede progress. We revisit the characters from UNDER OUR SKIN as they emerge into better health, reclaiming their lives and dignity, and offering hope to the legions now suffering. As Lyme disease surges, EMERGENCE shines a probing light on the issue and becomes a beacon in the dark."

http://www.underourskin.com/sequel/ 

UNDER OUR SKIN 2: EMERGENCE

Academy Award semifinalist UNDER OUR SKIN brought unprecedented awareness to the shocking story of Lyme disease, an often-chronic condition many doctors claimed was “all in your head."  Since then, the CDC has upped its estimate of annual cases by ten times, making Lyme disease more prevalent than HIV and breast cancer combined.  This highly-anticipated sequel investigates the deepening Lyme disease crisis and follows its casualties and controversies.  As the Lyme epidemic explodes globally, scandalous medical collusions and conflicts of interest incriminate the very healthcare systems meant to protect us.  Despite the obstacles that researchers, physicians and patients continue to face, promising new findings are emerging.  And when we revisit the unforgettable characters from UNDER OUR SKIN, we see that they have moved from horror to hope, arriving at better health and reclaiming their lives. 
(60 min., © 2014 Open Eye Pictures)

PRINCIPLE CREDITS

Producer/Director/Cinematographer
ANDY ABRAHAMS WILSON



I did some research and found out you can rent Under Our Skin the first part through Amazon Prime or you can buy either movie for home use through http://www.underourskin.com/store/


Lyme Disease Protest, Washington D.C. by Angele Rice


Lyme Disease Protest, Arlington VA by Angele Rice

Midcoast Maine Lyme Disease Conference a SUCCESS!!

https://bangordailynews.com/community/midcoast-maine-lyme-disease-conference-a-success/?ref=inline





Posted May 04, 2015, at 10:07 a.m.
 
On Sat May 2 at the Wiscasset Community Center, the Midcoast Lyme Disease Support & Education group, a nonprofit organization, held their 1st Annual Midcoast Maine Lyme Disease conference. And the turnout was phenomenal!
The registration log showed 254 in attendance at this FREE community event that housed speakers that were experts in the field of Lyme and Tickborne diseases. Those who attended learned why Lyme disease is hard to diagnose and treat, why current available testing is faulty and why Lyme Disease in general is so controversial. People came from all over the state and New England. They came with questions and left with answers. One family came from Michigan with their teenage son who has been suffering from Lyme Disease and unable to find anyone to treat him. They were able to connect with one of the Lyme Literate doctors from the conference and he was going to be seen on Monday of this week! That family drove all the way to Maine with fear and desperation and left with tears of joy and left with a new found sense of hope. That is the feeling that so many experience when they finally connect with a Lyme Literate doctor and are being heard and believed for the first time. When they are given hope that they can get better.
On behalf of the Midcoast Lyme Disease Support & Education, Paula Jackson Jones and Angele Rice would like to thank all who participated in making this first year conference a huge success ~ the Wiscasset Community Center for providing their facility and meal provisions, friends and family who donated their time and resources to keep things running smoothly, the guest speakers and the vendors who came to help the people of Midcoast Maine better understand this very complex disease.
*********************************************************
If you missed the conference, not to worry. It was recorded and the 2-DVD sets are available for purchase for $20 (send an email to: midcoastlymediseasesupedu@gmail.com)
*********************************************************
The Midcoast Lyme Disease Support & Education is a nonprofit organization that raises awareness, fosters education, advocates for change and provide community support to the people in Midcoast Maine who are affected by Lyme and Tickborne associated diseases. If you would like to know more about us, have questions about our upcoming events or Lyme Disease in general, please visit our website at
 www.midcoastlymediseasesupport.blogspot.com















We Made A Difference




We Made a Difference.
By Kerry Nelson


On May 2, 2015, we made a difference. We participated in the first annual Midcoast Lyme Disease Support and Education Conference, which was put together by Paula Jackson Jones and Angele Rice. Those two women have worked tirelessly to advocate for people with tick-borne illness, despite their own health issues.

My daughter and I, along with Alison Kelsey-Bryant and her daughter, were in charge of the merchandise table. We were stationed in the lobby of the Wiscasset Community Center and we had the privilege of watching 254 people enter the facility. Some planned for months to attend the conference; others were driving by and saw the sign. Some walked smoothly; some walked slowly; some came on crutches; some came in wheelchairs. Some came to learn for themselves; some came to learn for their loved ones; some came to tell their stories; some came to tell the stories of those who did not make it. Each of them came because they are affected in some way by tick-borne illnesses.

We met people from neighboring towns and some from as far away as Fort Kent, Maine and from Rhode Island. We even met a family who drove their camper from just outside Detroit, Michigan to Wiscasset, ME, just to come to this conference so they could get information and try to find a doctor for their son. We heard the same kind of comments over and over again. “My doctor didn’t believe me, he said it was stress.” “I had every test known to man and they still didn’t find anything.” “They thought I was making it up.” “I nearly died.” “I lost my job.” “I didn’t find a tick or a rash.” “I’m so tired of being sick.”

By afternoon, we started hearing different comments. “I have learned so much today.” “I’m going to find myself a Lyme-literate doctor.” “Now, I know what to do.” “Thank you so much for having this conference.” “Thank you, thank you, thank you.”

So, yes, we made a difference, not because we sold merchandise, but because we participated. We listened. We answered questions. We shared our stories. We offered support. It doesn’t matter that we are exhausted and sore today. It doesn’t matter that it might take days for some of us to recuperate after all of the preparation and then the long day of the conference. It matters that we were there.







Friday, May 1, 2015

Conference 2015 is Tomorrow!!!


Any Photos you take at this conference that you would like to share with us please use hashtag #MLDSE on social media sites like Facebook and Twitter so we can find all pictures after our event!


For those using GPS to come to our conference please save this address!!