Wednesday, May 20, 2015

Addressing Lyme Disease Inflammation




ADDRESSING LYME DISEASE INFLAMMATION
The Midcoast Lyme Disease Support & Education announces Jolinda Rockett, Acupuncture and Homeopathy, will be speaking at their next Lyme Disease support meeting on Tuesday, May 26.  The meeting will be held at the Wiscasset Community Center 242 Gardiner Road (Rt27), Wiscasset, Maine from 6:00-8:00pm and it is free and open to the public.

Specializing in treating chronic Lyme Disease and tick borne associated coinfections, Jolinda will be talking about the "inflammatory" aspects of Lyme disease, addressing ways acupuncture and homeopathy can address it and sharing some take home ideas of how anyone can improve the body's fight against any inflammation.

Originally from Texas, Jolinda has been practicing in Camden, Maine since 1989.  She holds a BSN from University of Texas, MAc from Sophia Institute and homeopathy studies around the country, receiving her CCH in 2013.

For more information about this meeting, please call Paula.Jackson Jones (207) 446-6447 , Angele Rice (207) 841-8757 or visit our websitewww.midcoastlymediseasesupport.blogspot.com


Wednesday, May 6, 2015

Maine Call to Action- Contact Your Legislators on LD 422

MAINE CALL TO ACTION - CONTACT YOUR LEGISLATORS ON LD 422

Please COPY and REPOST!!! A "SHARE" will only capture the link!!!

It is time to contact  your Representatives and Senators!

The Lyme bill, LD 422,  An Act To Improve Access to Treatments for Lyme Disease, is going to come to the floor of the House maybe as early as tomorrow, Thursday May 7th!. It has come out of Committee as a divided report and the MAJORITY Report is what you want to ask your legislator to support.  

Please use the sample language below to send an email or make a call, to your House Representative and Senator as soon as possible.  If you wish to read more information about the history of this legislation, there is more data below the sample language.   
 
You can find your legislators here by entering your address:

*********************************************************************

Sample Letter

Dear Representative {Last Name},
or
Dear Senator {Last Name},
 
I am requesting that you support the Majority Report for LD 422, An Act To Improve Access to Treatments for Lyme Disease, which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics.

Please, DO NOT support the Minority Report as this language ties the hands of the licensing boards to discipline doctors when necessary. 

If you have questions please feel free to contact me. 

Thank you for your support of the Majority Report of LD 422.  

Sincerely,
Name
Address
Telephone
email

**********************************************************************************************************************************
Here is the longer version we sent to MaineLD list serve:

It is time to contact  your Representatives and Senators!

The Lyme bill, LD 422,  An Act To Improve Access to Treatments for Lyme Disease, is going to come to the floor of the House maybe as early as tomorrow, Thursday May 7th!. It has come out of Committee as a divided report and the MAJORITY Report is what you want to ask your legislator to support.  

Please use the sample language below to send an email or make a call, to your House Representative and Senator as soon as possible.  If you wish to read more information about the history of this legislation, there is more data below the sample language.   
 
You can find your legislators here by entering your address:

*********************************************************************

Sample Letter

Dear Representative {Last Name},
or
Dear Senator {Last Name},
 
I am requesting that you support the Majority Report for LD 422, An Act To Improve Access to Treatments for Lyme Disease, which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics.

Please, DO NOT support the Minority Report as this language ties the hands of the licensing boards to discipline doctors when necessary. 

If you have questions please feel free to contact me. 

Thank you for your support of the Majority Report of LD 422.  

Sincerely,
Name
Address
Telephone
email

*********************************************************************

The History

In the April 23, 2015 Work Session LD 422, An Act To Improve Access to Treatments for Lyme Disease, came out of Committee as a divided report with a Majority Report and a Minority Report.  This means that when it comes to the House floor, both may be presented and voted on.  We want the Majority Report!

This is the Majority Report:  Rep. Fecteau presented an amendment that mirrors the language of the 2009 Massachusetts law which will allow physicians to use their clinical judgement to treat Lyme patients with long-term antibiotics. 
 It was approved by Committee members Sen. Patrick, Rep. Austin, Rep. Campbell, Rep Fecteau, Rep Gilbert, Rep Lockman and Rep Stetkis.  If any of these folks are your legislators, send them a thank you note. We are pleased that this came out as the Majority Report.  

This is the Minority Report / Resolve: At the same session Sen. Volk and Rep Herbig submitted a "Resolve".  Essentially, this Resolve is a document that directs the licensing boards to send a letter to licensees telling them they can use "non-traditional treatments" and they won't be disciplined based on that, if they are using informed consent and document treatment results in patients' charts.
A Resolve does not carry the weight of law even if it is, ultimately, passed.
The Minority Report / Resolve was approved by Committee members Sen. Volk, Rep. Herbig, Rep. Ward and Rep. Bates.  If any of these folks are your legislators, you may want to contact them and encourage them to rethink their position and vote for the Majority Report.  

Sen. Cushing and Rep Mastraccio were not present for the Work Session and vote, but we have since heard that they voted for the Minority Report / Resolve so that makes the final vote 7-6 in our favor.  Again, if any of these folks are your legislators, you may want to contact them and encourage them to rethink their position and vote for the Majority Report.

Both reports are listed here:

We have been in contact with Maine doctors and they are appreciative of all of your efforts!

Thank you so much, 

The Lyme Legislative Work Group






Tuesday, May 5, 2015

Emergence (Part 2 of Under Our Skin) Viewing!



What the trailor for the movie here ^^

"In this dramatic follow-up to the widely acclaimed UNDER OUR SKIN, EMERGENCE takes the viewer on a journey from horror to hope. We witness the emerging epidemic of Lyme disease as infection and education spread globally. We watch as the truth emerges about the disease’s persistence and reach, about promising new research, and about medical collusion and conflicts of interest that continue to impede progress. We revisit the characters from UNDER OUR SKIN as they emerge into better health, reclaiming their lives and dignity, and offering hope to the legions now suffering. As Lyme disease surges, EMERGENCE shines a probing light on the issue and becomes a beacon in the dark."

http://www.underourskin.com/sequel/ 

UNDER OUR SKIN 2: EMERGENCE

Academy Award semifinalist UNDER OUR SKIN brought unprecedented awareness to the shocking story of Lyme disease, an often-chronic condition many doctors claimed was “all in your head."  Since then, the CDC has upped its estimate of annual cases by ten times, making Lyme disease more prevalent than HIV and breast cancer combined.  This highly-anticipated sequel investigates the deepening Lyme disease crisis and follows its casualties and controversies.  As the Lyme epidemic explodes globally, scandalous medical collusions and conflicts of interest incriminate the very healthcare systems meant to protect us.  Despite the obstacles that researchers, physicians and patients continue to face, promising new findings are emerging.  And when we revisit the unforgettable characters from UNDER OUR SKIN, we see that they have moved from horror to hope, arriving at better health and reclaiming their lives. 
(60 min., © 2014 Open Eye Pictures)

PRINCIPLE CREDITS

Producer/Director/Cinematographer
ANDY ABRAHAMS WILSON



I did some research and found out you can rent Under Our Skin the first part through Amazon Prime or you can buy either movie for home use through http://www.underourskin.com/store/


Lyme Disease Protest, Washington D.C. by Angele Rice


Lyme Disease Protest, Arlington VA by Angele Rice

Midcoast Maine Lyme Disease Conference a SUCCESS!!

https://bangordailynews.com/community/midcoast-maine-lyme-disease-conference-a-success/?ref=inline





Posted May 04, 2015, at 10:07 a.m.
 
On Sat May 2 at the Wiscasset Community Center, the Midcoast Lyme Disease Support & Education group, a nonprofit organization, held their 1st Annual Midcoast Maine Lyme Disease conference. And the turnout was phenomenal!
The registration log showed 254 in attendance at this FREE community event that housed speakers that were experts in the field of Lyme and Tickborne diseases. Those who attended learned why Lyme disease is hard to diagnose and treat, why current available testing is faulty and why Lyme Disease in general is so controversial. People came from all over the state and New England. They came with questions and left with answers. One family came from Michigan with their teenage son who has been suffering from Lyme Disease and unable to find anyone to treat him. They were able to connect with one of the Lyme Literate doctors from the conference and he was going to be seen on Monday of this week! That family drove all the way to Maine with fear and desperation and left with tears of joy and left with a new found sense of hope. That is the feeling that so many experience when they finally connect with a Lyme Literate doctor and are being heard and believed for the first time. When they are given hope that they can get better.
On behalf of the Midcoast Lyme Disease Support & Education, Paula Jackson Jones and Angele Rice would like to thank all who participated in making this first year conference a huge success ~ the Wiscasset Community Center for providing their facility and meal provisions, friends and family who donated their time and resources to keep things running smoothly, the guest speakers and the vendors who came to help the people of Midcoast Maine better understand this very complex disease.
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If you missed the conference, not to worry. It was recorded and the 2-DVD sets are available for purchase for $20 (send an email to: midcoastlymediseasesupedu@gmail.com)
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The Midcoast Lyme Disease Support & Education is a nonprofit organization that raises awareness, fosters education, advocates for change and provide community support to the people in Midcoast Maine who are affected by Lyme and Tickborne associated diseases. If you would like to know more about us, have questions about our upcoming events or Lyme Disease in general, please visit our website at
 www.midcoastlymediseasesupport.blogspot.com















We Made A Difference




We Made a Difference.
By Kerry Nelson


On May 2, 2015, we made a difference. We participated in the first annual Midcoast Lyme Disease Support and Education Conference, which was put together by Paula Jackson Jones and Angele Rice. Those two women have worked tirelessly to advocate for people with tick-borne illness, despite their own health issues.

My daughter and I, along with Alison Kelsey-Bryant and her daughter, were in charge of the merchandise table. We were stationed in the lobby of the Wiscasset Community Center and we had the privilege of watching 254 people enter the facility. Some planned for months to attend the conference; others were driving by and saw the sign. Some walked smoothly; some walked slowly; some came on crutches; some came in wheelchairs. Some came to learn for themselves; some came to learn for their loved ones; some came to tell their stories; some came to tell the stories of those who did not make it. Each of them came because they are affected in some way by tick-borne illnesses.

We met people from neighboring towns and some from as far away as Fort Kent, Maine and from Rhode Island. We even met a family who drove their camper from just outside Detroit, Michigan to Wiscasset, ME, just to come to this conference so they could get information and try to find a doctor for their son. We heard the same kind of comments over and over again. “My doctor didn’t believe me, he said it was stress.” “I had every test known to man and they still didn’t find anything.” “They thought I was making it up.” “I nearly died.” “I lost my job.” “I didn’t find a tick or a rash.” “I’m so tired of being sick.”

By afternoon, we started hearing different comments. “I have learned so much today.” “I’m going to find myself a Lyme-literate doctor.” “Now, I know what to do.” “Thank you so much for having this conference.” “Thank you, thank you, thank you.”

So, yes, we made a difference, not because we sold merchandise, but because we participated. We listened. We answered questions. We shared our stories. We offered support. It doesn’t matter that we are exhausted and sore today. It doesn’t matter that it might take days for some of us to recuperate after all of the preparation and then the long day of the conference. It matters that we were there.







Friday, May 1, 2015

Conference 2015 is Tomorrow!!!


Any Photos you take at this conference that you would like to share with us please use hashtag #MLDSE on social media sites like Facebook and Twitter so we can find all pictures after our event!


For those using GPS to come to our conference please save this address!!