Thursday, August 18, 2016


The next time a Dr tells you that they follow the CDC guidelines or that they adhere to the IDSA guidelines (even after you tell them that those guidelines that they pledge allegiance to were pulled off the National Guideline Clearinghouse back in Feb 2016 for being outdated), bring this to their attention ~ the single Footnote at the bottom of the IDSA/CDC guidelines:
FOOTNOTE: These guidelines were developed and issued on behalf of the Infectious Diseases Society of America. It is important to realize that guidelines cannot always account for individual variation among patients. They are not intended to supplant physician judgment with respect to particular patients or special clinical situations. The Infectious Diseases Society of America considers adherence to these guidelines to be voluntary, with the ultimate determination regarding their application to be made by the physician in the light of each patient's individual circumstances.

And yet, even with these "voluntary guidelines" we had to fight for laws to protect our Lyme doctors for doing just this ~ making the ultimate determination of our care based on our individual circumstances.
Your Maine PCP needs to know about this. They need to know that IDSA/CDC guidelines were pulled out of the federal database for being outdated, they need to know that ILADS guidelines are the only guidelines currently on the NGC website and that Maine law LD422 protects them to treat chronic lyme patients.
If you need information to take to your provider, please visit our website or send us an email.