Wednesday, May 23, 2018

Bremen Library

Join us at the Bremen Library on Thursday, May 24th at 7:00 when our featured speaker will be Paula Jackson Jones, president and co-founder of the Mid Coast Lyme and Disease Support & Education group.
The non-profit was formed by two women who had survived Lyme and tick-borne disease and who wanted to forge an easier pathway to resources for others suffering from the disease. From education to physician referrals and support resources, MLDSE is a 24/7/365 year round, all volunteer non-profit whose mission is to raise awareness, foster education, advocate for change and provide support to those afflicted by Lyme.
Paula Jackson Jones is the President and Co-founder and survivor of late stage neurological Lyme disease that was complicated by four co-infections. Misdiagnosed for years by 23 doctors and specialists, she demanded to see a provider who knew more about Lyme, began treatment and is now 4 years in complete remission. She travels all over Maine and New England, sharing her story and helps guide people to much needed resources.
FMI: 529-5572

Thursday, May 10, 2018

Living with Lyme | Patients say it's real after being misdiagnosed for years

Living with Lyme | Patients say it's real after being misdiagnosed for years
Author: Vivien Leigh 

"Imagine living with a disease that causes serious health problems but not knowing that you are infected?
Many patients spend years misdiagnosed only to find out that they have Lyme Disease."                
Read Article In Full Here:

MLDSE's President and Co-Founder Paula Jackson Jones shares her own personal story to deliver HOPE to others afflicted by Lyme and tick-borne disease, that there is help available and that they too can get get better.

To View Her Interview
Please Click Here:

Join Vivien Leigh Journalist Thursday at 6:00pm for more about Living With Lyme.

Friday, May 4, 2018

Lyme Innovation: Updates from the Tick-Borne Disease Working Group

Presentation given by Dr. Kristen Honey, PhD
at the 4th Annual Midcoast Lyme Disease
Support & Education Conference
Saturday, April 28th, 2018. 

Monday, April 30, 2018

Brunswick Lyme Support Meeting with Special Guests

Midcoast Lyme Disease Support & Education (MLDSE) are pleased to host Dr. Carrie Werner ND and Melanie Clarke as their guest speakers at their Brunswick Lyme Support meeting Wed May 2 from 6-8pm at Mid Coast Hospital.  

Werner and Clarke are pleased to speak on the opening of their new clinic:
Riverside Healing Center

Riverside Healing Center, a patient- centered, holistic practice, will open their doors May 3rd, seeing patients Monday-Thursday.  Supporting patients on their journey to optimal wellness is of the utmost importance to the practitioners at Riverside Healing Center.  Patients will be provided with full naturopathic care, extensive lab work both conventional and functional testing, herbal, nutrient and homeopathic supplements, reflexology, reiki and feet reading.  

Dr. Carrie Werner is a Naturopathic doctor and midwife. Carrie spent two and a half years in Honduras as public health volunteer in the Peace Corps. Having always felt a call to medicine, her time in Honduras helped Carrie to decide to attend Naturopathic medical school to combine her budding interest in natural healing therapeutics with her call to medicine.
Carrie attended the National University of Natural Medicine in Portland Oregon where she earned her Naturopathic medical degree and completed an apprenticeship in Naturopathic midwifery. After completing her medical studies Carrie moved to Melbourne, Australia where she owned and practiced at Your Natural Path for 5 years.  Carrie moved back to America in 2014 to meld her practice of naturopathy and midwifery. Carrie is passionate about empowering her patients in their healthcare and is dedicated to supporting them in their journey to optimal wellness. She is committed to meeting people where they’re at in their journey and providing support that fits into their lifestyle. She and her patients work in partnership to achieve their goals through a variety of treatments including diet, nutrient therapy, neurotransmitter balancing, botanical medicine and homeopathy.

Melanie Clarke is a reflexologist, medical scientist and chef. Melanie has always had a fascination with the science and art which makes up the body and her 10 years of work experience in biochemistry as a medical scientist gives her a very unique perspective of the body and its internal workings.  She received her Diploma of Reflexology from the Australian School of Reflexology and Relaxation (ASRR) in 2008 and started in private practice creating Assisting Soles as well as teaching reflexology for 5 years.  She moved to Maine in 2014 and continued her reflexology practice.  Melanie believes everyone has an amazing ability to heal themselves and given the encouragement and space, everyone can develop their skills to thrive.

Friday, April 20, 2018

Could Lyme Disease Be The First Epidemic of Climate Change

Could Lyme Disease Be The First Epidemic of Climate Change
By Aislinn Sarnacki, BDN Staff
A public warning and call to action, the new book “Lyme: The First Epidemic of Climate Change,” by investigative journalist Mary Beth Pfeiffer, sheds light on a tick-borne disease that recently has emerged to infect hundreds of thousands of people in the United States each year.
Lauded by well-known authors and conservationists, including Jane Goodall, Jane Alexander and Bill McKibben, “Lyme” officially hits bookstore shelves on April 17. The book challenges mainstream medicine and prevailing perceptions of the complicated disease.
“There’s a problem with how we manage Lyme disease,” Pfeiffer said in a recent phone interview. “People need to be aware that we have a long way to go before we get to the point where we can adequately diagnose and treat Lyme disease and other tick-borne diseases.”
Lyme disease derives its name from where it was first diagnosed: Old Lyme, Connecticut, in 1975. Caused by the bacterium Borrelia burgdorferi, Lyme disease is transmitted to humans through the bite of infected blacklegged ticks, also known as deer ticks, which has been expanding its range in the U.S. and other countries over the past decade.
In Maine, black-legged ticks became increasingly common in the late 1980s and early 1990s, starting in the southern and coastal regions of the state and spreading north and inland. Coinciding with the spread of these ticks, reports of Lyme disease in Maine began to increase during that time, reaching an all-time high in 2016 with 1,488 cases of new Lyme disease infections reported by Maine to the U.S. Centers for Disease Control and Prevention.
Pfeiffer first became interested in Lyme disease in 2012 as an investigative reporter for a Dutchess County, New York, newspaper, the Poughkeepsie Journal. She planned to write one or two stories on the topic, keeping the coverage fairly local.
“At the time, I was unaware of the controversies surrounding Lyme disease,” she said, “and I was unaware of the ability of the disease to get as advanced and out of control that I subsequently discovered it to be. In short, I thought it was this pesky, common disease. Not a big deal.”
It wasn’t long before her initial view of Lyme was shook to its foundations. The more she researched the problem, the bigger it became.
With the intentions of writing a book on the topic, Pfeiffer took an early retirement from the newspaper business in 2015 and devoted herself to investigating Lyme. In her research for what became a 304-page book, she read approximately 300 scientific papers on the topic and interviewed medical researchers, health care professionals, wildlife biologists and entomologists around the world. She also gathered stories from people from all walks of life who had been affected by Lyme.
“[Lyme] has been in the environment for millions of years. That we know.” Pfeiffer said. “But it really exploded just as climate change was getting to the point where we were noticing differences in temperature, differences in snowfall, differences in the length of growing seasons and so forth.”
“I ultimately concluded that it was the first major epidemic to move about the planet as a result of climate change,” Pfeiffer said, well aware that some readers may disagree.
While climate change is at the heart of many of the narratives in the book, Pfeiffer spins off this theme to touch upon many different facets of Lyme disease, from its biological makeup to groundbreaking research being done to find better ways to diagnose and treat the disease.
“Basically mainstream medicine frames Lyme disease as easy to diagnose and easy to treat, and it’s not,” she said. “There’s a lot of evidence that it’s not.”
“[Lyme disease is] called the great imitator because it presents in so many different ways that it’s hard to pin down,” she said. “It can cause depression. It’s been associated with strokes, pains in your joints. It’s rashes. It’s numbness and paralysis. It can go to the heart. It can affect vision. There are so many ways it causes disability and symptoms in people.”
While it’s impossible to write a book about Lyme disease without much of it being scary and discouraging, Pfeiffer does attempt to insert messages of hope, especially in the final chapter. Optimistically titled “A Lyme-Free World,” the chapter contains information about how people can protect themselves from ticks and describes research being conducted to develop anti-Lyme and anti-tick vaccines.
Also in this final chapter, Pfeiffer expresses the opinion that more funding should be allocated to Lyme disease research. And to illustrate her point, she compares the $1.1 billion in federal funding apportioned to research the mosquito-borne Zika Virus in 2016, to the $2.7 million in federal grants awarded to research on Lyme that same year.
“This isn’t about which disease tops the other as a public health calamity,” she wrote in the chapter. “It’s about whether responses to each are proportional.”
“There are two options to curb Lyme and tick-borne disease,” she continued. “First, get rid of or, more practically, sharply reduce ricks. Second, stop them from infecting people. We are a long way from reaching either of those goals. It is a problem of will, not ability. Science has tackled bigger problems and in less time.”
“Lyme: The First Epidemic of Climate Change,” will be available for sale at bookstores on Tuesday, April 17.

Mary Beth Pfeiffer's Website

Edgecomb / Wiscasset Lyme Support Meeting

How Not To Have A Tick Encounter

Tuesday, April 3, 2018

How Not To Have A Tick Encounter: Ladies Day at Damariscotta Hardware

MLDSE will be in the building before 10am to welcome early bird shoppers!

How Not To Have A Tick Encounter: Bremen Library

Join MLDSE at the Bremen Library on Thursday, April 5th at noon for a second in a series of Brown Bag lunches featuring Paula Jackson Jones, President and Co-founder of Midcoast Lyme and Disease Support & Education. A survivor of late stage neurological Lyme  Disease and co-infections, Paula will share her journey from misdiagnosis by 23 doctors and specialists to remission and how MLDSE  travels state wide, raising awareness, fostering education and sharing free resources and supports with patients and their families

Bring your lunch. Beverages and dessert will be provided. FMI: 529-5572

Friday, March 23, 2018

State of Maine Sportsman Show

Hey folks ~  Come on up/down/over to the Augusta Civic Center March 30-31 and April 1st for the State of Maine Sportsman Show ~  and be sure to stop by our #MLDSE booth for information and education about prevention and tick borne disease. 

We will be giving a presentation each day so check out the schedule and maybe we'll see you there!! This event has something for outdoors enthusiasts of all ages!!

For more information including the schedule of presentations:

Edgecomb/Wiscasset Lyme Support Meeting

On the Radio with the Chris Wolf Show

Tune in, Knox and Waldo county listeners, Monday morning (March 26 8am) as MLDSE's own Paula Jackson Jones will be sharing Lyme education, prevention and resources on the Chris Wolf show hosted by Maine Coast tv.

The Chris Wolf Show is broadcast live every Monday, Wednesday, and Friday from 8:00 – 9:00 a.m. by Maine Coast TV on

The Chris Wolf Show is also broadcast live in Knox County on Channel 7 Time Warner Monday, Wednesday and Friday and at later times during normal programming.  It is also broadcast live on Belfast Community TV, Channel 2, in Belfast Maine.

If you miss the live stream of a particular Chris Wolf Show, approximately one week after the broadcast it will be available below on the Recent Chris Wolf Shows section.

Radio Broadcast:

The Chris Wolf Show audio is also broadcast live on WRFR FM 93.3 Rockland and 99.3 Camden/Rockport as well as audio streaming on the Internet at

Thursday, March 22, 2018

Warren Free Public Library Prevention Talk

Midcoast Lyme Disease Support and Education will be at the Warren Free Public Library this Saturday, March 24th from 1-2pm for an information talk about Lyme Disease covering prevention to available resources if one is bitten and exposed to a tick-borne disease.

Warren Free Public Library
282 Main Street
Warren Maine 04864

Wednesday, March 7, 2018

Brunswick Lyme Support Meeting Cancelled

Due to the inclement weather (nor'easter) slated to hit Maine Wed evening, MLDSE is cancelling their March 7th Lyme Support meeting.
The speakers from Scarborough Integrative Health ~ Dr Jill Mahoney MD, Dr Jacob Aguiar ND and David Aronson LCSW ~ will be at the April 4th Brunswick Lyme support meeting from 6-8p so mark your calendars!

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Sunday, February 25, 2018

Coastal Journal Article

"Founded by two women, the local organization has gained international recognition.
Have you heard the backstory on Midcoast Lyme Disease Support and Education? Two local women who suffered from the disease made an organization that now connects Mainers to resources all over the country."
~ Coastal Journal, Midcoast Spotlight on Business

Wiscasset Lyme Support Meeting

Please NOTE change in location for this meeting only!
Downeast Medicinals is our Guest Speaker and hosting our meeting at their storefront location (located just before the Wiscasset bridge) at 25A Route 1 in Edgecomb, Maine.
If you have any questions, please feel free contact us.
All are welcome to attend this meeting.

See you there!

Sunday, January 7, 2018

January Rockland Lyme Support Meeting Cancelled

The next Rockland Lyme Support meeting will be February 13th, 2018 at its regular time.