Friday, September 27, 2019

Quality of Life among Patients with Chronic Lyme Disease survey



Quality of Life among Patients with Chronic Lyme Disease
Principle Investigator: Debra Gillespie PhD, RN
Assistant Professor of Nursing
University of Southern Maine


The survey following this cover letter is data that is being collected for a research study. The purpose of this research study is to better understand the quality of life among patients with Chronic Lyme disease. Completion of this survey constitutes your agreement to participate in this research. This is voluntary on your part. You do not have to complete this survey and if you start to complete the survey and change your mind, you may stop at any time. 

There are no direct benefits to you for completing this survey but it is anticipated that the knowledge gained from this research study will benefit Lyme disease patients in the future. 

There is only minimal risk to you, as no personal protected information will be collected. Aggregated data only will be reported. No identifiable or individual information is being collected or reported. 

There is no monetary reward or any type of compensation (payment) to you for completing the survey. Debra Gillespie, the Principle Investigator, is the only person who will see your answers to the survey. The results of this study will be shared at nursing conferences and published in a nursing journal as a combined group only. 

If you have any questions about this research study, you may email Debra Gillespie at debra.j.gillespie@maine.edu

If you have any questions about your rights as a research participant, you may call the Institutional Review Board at the University of Southern Maine at 207-780-4517.

Thank you for your participation in the survey.

Debra Gillespie PhD, RN

**************************************************

If you have chronic Lyme disease and are interested in participating in a research survey, please click the link below for more information:

Sunday, August 18, 2019

Damariscotta Lyme Support Meeting Cancelled

***** Please Note *****

Our Damariscotta lyme support meeting WILL NOT be held this month as we will be at the Union Fair Sat Aug 17-24

If you need assistance, please email us at info@mldse.org

For referrals, meeting information or general information about Tick-borne Disease, visit our website www.mldse.org


Points of Light Award

In his 1989 inaugural address, President George H.W. Bush shared his vision of "a thousand points of light" — individuals and organizations across the nation helping others through service. 

In 1990, President Bush established the Daily Point of Light Award for individuals making a difference. During his administration, President Bush formally recognized more than 1,000 volunteers as “points of light.” He advocated that “points of light” demonstrate how “a neighbor can help a neighbor.” 

On Aug 16, 2019, co-founders Paula Jackson Jones and Angèle Rice were honored as joint Points of Light #6,586 for their volunteerism and steadfast community service through their nonprofit,  Midcoast Lyme Disease Support & Education. 

Read more about their award story:


Tuesday, June 4, 2019

Our June Support Meetings




BRUNSWICK 

June 5th

6:00-8:00pm

(First Wednesday of the month)

Mid Coast Hospital
Conference Rooms 1&2
123 Medical Center Dr, 
Brunswick ME

FMI:
Angele Rice 207-841-8757
Email: info@mldse.org

ROCKLAND

June 11th
 
6:00-8:00pm

(Second Tuesday of the month)

The Knox Center 
(Longterm and Rehab Building)
6 White Street, Rockland, ME

Use Downstairs Back of the Building Entrance
 
FMI: 
Paula Jackson Jones 207-446-6447 
Email: info@mldse.org

DAMARISCOTTA

Our Daytime Meeting

June 17th

1:00-3:00pm
 
(Third Monday of the month)
 
Damariscotta First Baptist Church 
5 Bristol Rd, Damariscotta ME 

FMI: Paula Jackson Jones 207-446-6447 or
Angele Rice 207-841-8757
Email:  info@mldse.org


If you are looking for a Lyme Disease support group nearest you in the state of Maine, click here: 

Saturday, May 18, 2019

Lyme Disease Awareness with the Portland Seadogs

Midcoast Lyme Disease Support & Education and the Maine CDC are partnering to co-host Lyme Disease Awareness and Prevention Day with the Portland Sea Dogs at the ballpark on Saturday, May 25th when the Sea Dogs host Altoona Curve at 1:00 PM at Hadlock Field.

The Midcoast Lyme Disease Support & Education group was created and exists to raise awareness, foster education, advocate for change and provide support for those affected by Lyme Disease and other tick-borne associated disease. To learn more, visit www.mldse.org !

General Admission tickets are unassigned seats (bleacher-style seats with backs) and are $8.00/person. Reserved seats are assigned seats in section 210 (stadium style seats) and are $10.00/person.

A portion of the ticket sales will benefit Midcoast Lyme Disease Support and Education and their ongoing mission to provide support and increase awareness about Lyme Disease in the community.

To buy tickets:
https://groupmatics.events/event/Lymedisease


Belfast Library Event: Tick-borne Disease Educational Panel

May is Lyme Disease Awareness month, and Belfast Free Library will host a free Lyme and tick-borne disease educational panel Tuesday, May 21, at 6:30 p.m.

Panelists are Elizabeth Yori, ND, of Heritage Natural Medicine; Paula Jackson Jones, president and co-founder of Midcoast Lyme Disease Support & Education; and Paul McFarland, owner of Tick Talk Maine.

The panel will cover tick species in Maine and the diseases they carry, how to protect yourself against having a tick encounter, and steps to take if bitten by a tick, from risk exposure to diagnosing to treatment.


Damariscotta Lyme Disease Support: Daytime Meeting


Mad Scientist Scramble for Lyme Disease 5k

SAVE THE DATE: MAY 19, 2019. The Ellsworth High School National Science Honor Society's Mad Scientist Scramble for Lyme Disease 5k! If a 5k isn’t your thing, join us instead for our 1 mile fun run! Registration for both events will be from 7:30-8:30 on the morning of the race, or you can mail it in before May 1st. The 1 mile fun run will begin at 8:30, and the 5k will begin at 9:30! The cost to register for the fun run is $10 and the 5k is $20.

Facebook Event Link:

https://www.facebook.com/events/1931020217024524/?ti=cl



Monday, April 8, 2019

Rockland Lyme Disease Support Meeting is Cancelled

Due to a family emergency our Rockland Lyme Disease Support meeting that is scheduled for tomorrow is cancelled. If you have any questions please email us: info@mldse.org or contact Angele Rice #207-841-8757


Tuesday, March 5, 2019

Our March Lyme Support Meetings




On Wednesday,  March 6th, Midcoast Lyme Disease Support & Education (MLDSE) will resume holding their Lyme & Tick-borne Disease support meetings 6-8pm at Mid Coast Hospital in Brunswick. This month, we will be meeting in the Board room (normally we meet in the conference rooms 1&2)

On Tues March 12th, our Rockland meeting will be held from 6-8p at the Knox Center, 6 White St in Rockland (downstairs in the Rockland room).

Damariscotta is our daytime meeting and we will meet on Mon March 18th from 1-3pm at the Damariscotta Baptist Church.

These meetings are free and open to the public and packed full of educational material and connections to resources. 

MLDSE holds several meetings across Midcoast Maine: Brunswick (1st Wed 6-8p),  Rockland (2nd Tues 6-8p) and Damariscotta (3rd Mon 1-3p).  

Information about our meetings, locations/times and guest speakers can be found on our website www.mldse.org and Facebook page.

For questions, please contact Paula  (207) 446-6447, Angele (207) 841-8757 or info@mldse.org


Maine Support Group List:  http://www.mldse.org/p/maine-lyme-disease-support-groups.html?m=1

Friday, March 1, 2019

Our Upcoming Conference

Please Click 
On Our Conference 2019 
Website Tab
 for all event details.