Friday, September 27, 2019

Quality of Life among Patients with Chronic Lyme Disease survey

Quality of Life among Patients with Chronic Lyme Disease
Principle Investigator: Debra Gillespie PhD, RN
Assistant Professor of Nursing
University of Southern Maine

The survey following this cover letter is data that is being collected for a research study. The purpose of this research study is to better understand the quality of life among patients with Chronic Lyme disease. Completion of this survey constitutes your agreement to participate in this research. This is voluntary on your part. You do not have to complete this survey and if you start to complete the survey and change your mind, you may stop at any time. 

There are no direct benefits to you for completing this survey but it is anticipated that the knowledge gained from this research study will benefit Lyme disease patients in the future. 

There is only minimal risk to you, as no personal protected information will be collected. Aggregated data only will be reported. No identifiable or individual information is being collected or reported. 

There is no monetary reward or any type of compensation (payment) to you for completing the survey. Debra Gillespie, the Principle Investigator, is the only person who will see your answers to the survey. The results of this study will be shared at nursing conferences and published in a nursing journal as a combined group only. 

If you have any questions about this research study, you may email Debra Gillespie at

If you have any questions about your rights as a research participant, you may call the Institutional Review Board at the University of Southern Maine at 207-780-4517.

Thank you for your participation in the survey.

Debra Gillespie PhD, RN


If you have chronic Lyme disease and are interested in participating in a research survey, please click the link below for more information: